Focus On What You Already Have

Christmas is upon us, and here I am sitting on the floor, late at night, with only the glow of the Christmas tree lights and the screen of my laptop illuminating the room.  It is quiet in my home, yet somehow music keeps rolling through my head.  It isn’t a song of the season, but rather the melodic cadence of a lifetime.  Maybe it’s the glow of the trees, or the silence around me, but moments like this have a way of pulling my gaze away from the noise and pace of everyday life and bringing my focus back to what really matters.

shutterstock_344854976As we continue through a season that is supposed to be filled with joy and love, I look around and see stress and frustration on the faces of people around me.  Drivers are out of control with anger; shoppers are pushing and shoving each other; some people are going into debt trying to meet their (or others’) expectations of gift-giving.  There are also some who are living with great losses and challenges that cause all the standard holiday activities to simply disappear into the background.  In a season that is so often labeled as “magical,” it becomes easy to feel everything but a sense of wonder.   Busyness and activity has a way of doing that before we even realize it.

I had a hard time this year thinking of things to put on my wish list for Christmas.  I honestly couldn’t think of a single thing for which I had a great desire.  It’s not that I have everything I want materially; it’s just that I found myself incredibly content for the first time in a long time.  Somehow in the midst of my incredibly difficult and distressing year filled with loss and change, I realized what I valued had shifted.  It was only when I sat staring at an empty Christmas list that I even recognized it.

It’s so easy to spend our lives focusing on what we don’t have or what we’ve lost.  This year my husband’s parents passed away just five days apart, and my own dad’s dementia escalated to the point where he had to move into a memory care community.  It was devastating for us all, and my mom had to sell their house to ensure dad could stay in his new community as long as possible, as most memory care facilities aren’t covered by insurance (don’t get me started on that).  Mom moved in with me and my husband, and we’ve been adjusting to our new rhythm as best we can.   Loss after loss, grief after grief with no end in sight.  Have you just ever had that kind of year?  If so, then you understand how quickly our perspective changes. All we see is loss, because loss is all that is visible to us.  Everywhere we look there is more grief and pain, more difficult circumstances, and more that is slipping (or has slipped) between our fingers.  It is a natural reaction, but it doesn’t remove the negative effect it can have on our lives.

shutterstock_711300070Dementia has a way of turning everything upside down.  One of the things I love about Teepa Snow, and her organization (www.teepasnow.com ), is that she continually stresses the importance of looking at what someone still has, instead of what they’ve lost.  Build and foster your relationship based on things they are still able to do instead of what you wish they could still do.  When you focus on the abilities someone still possesses, it frees you from the stress that comes from your skewed expectations.  You can expect all day long that your loved one with dementia still has the abilities they’ve always had, but you will just be frustrated and your relationship with that person will suffer.  It’s about living in the moment, taking them where they are and creating beautiful experiences for you both.  I can’t help but think how that concept applies in so many other ways in life.  When we try to build or foster relationships while continually focusing on what the other person has lost or is lacking, we are setting ourselves up for frustration and disappointment.  We will never be satisfied, because we will always be seeing the holes instead of the substance.  We keep trying to work with what isn’t there instead of what is.  What a frustrating endeavor, and even more so when the relationship we are struggling with is the one with ourselves.  It is impossible to build or maintain that internal relationship when we see nothing but what we’ve lost or can’t do anymore.   We can’t build a relationship with ourselves with that perspective, because it will always be skewed and will never be fulfilling.  From a spiritual standpoint, it becomes so easy to start blaming God when things haven’t gone right in our world, or at least what we think is “right,” and then our relationship with Him suffers also.  It’s a slippery slope for sure.

So many people talk about the art of letting go, and there is definitely something incredible about releasing things that hold you back.  But what about the art of holding on?  We spend a lot of time trying to identify our obstacles instead of our strengths.  We focus on what we need to purge from our lives instead of what we already have that needs to be fostered.  I remember a comedian once said about the Bible, “Everyone thinks the Bible is a book of don’ts, but it’s really a book of do-s.  And if we’d spend our time doing the do-s, we wouldn’t have time to do the don’ts.”  I heard that over 30 years ago, and it still sticks with me today just as strongly, because it also applies to how we look at ourselves and others.  If we would spend our time fostering (or appreciating) what we already have, it doesn’t leave much time or energy to focus on what we are lacking in skills, abilities, or even material possessions.  Ask yourself these questions: What do I have to work with? Do I have a special ability or skill?  Am I good at something?  What are those things?  If you ask people to name something they are good at, many (if not most) of them will say they don’t know.  Why?  Because we don’t stop to look at what we have; we look at what we don’t.  We see what we wish we were, wish we had, or wish we could do.  I’m not saying that we shouldn’t strive to be better people, become more skilled, get an education or go after something new.  And I’m certainly not saying you can’t change.  This year has been full of huge changes for me internally, and believe me, it is always possible to change.  It’s possible to be freed from things that chained you in the past, but you also need to focus on what you already possess.  Search your heart deeply for a moment, you know what they are.  They are those things you have forgotten as the cares of this world continually try to distract you from seeing your gifts.

Image-1Dealing with someone who has dementia has brought so many lessons for dealing with life in general.  When someone has dementia, you have to meet them where they are in order to develop and maintain a relationship with them.  My dad isn’t who he used to be, and yet he is still exactly who he always was.  I just have to find those things that he can still do and live in that place with him.  This relationship is not exactly as I wished or hoped it would be at this stage in both our lives, but it can still be something amazing.  Embracing, celebrating and being thankful for all he can still do, allows me to be open to riding this roller coaster with him instead of watching him ride alone.  It allows me to live life with him now, in this moment, instead of continually seeing nothing but what has faded into the fabric of our journey.  If we want to fully live, we must live in the NOW.

Work with what you have.  Meet people where they are.  Meet YOURSELF where you are.  There are so many other abilities you may have, but those are above and beyond the fact you have been gifted with life itself.  Even the ability to breathe and communicate are gifts.  Trust me, you can always do something and then work from there.  If you will start seeing and nurturing what you already have, you’ll be amazed at what else will suddenly appear.  When you are willing to meet a dementia patient where they are, and work with what they have, it’s AMAZING how that tightly closed shell opens up to reveal the pearls within.  I’ve seen it with my own eyes.  If we could just do that with ourselves, what greatness might we unlock?  What goals might we achieve?  What dreams might come true if we will just stop jumping ahead (or backwards) and look at what we’ve lost and simply develop what we still have?

shutterstock_341963009So as we celebrate this Christmas that is upon us, let us first remember the greatest gift God gave us by coming to earth to sacrifice Himself so we can have eternal life.  But let us also remember He didn’t have much from a material standpoint, but He always worked with what He had.  When He called others to join Him, He worked with what they had and compelled them to do the same.  Let us celebrate not just the life of Christ, but the life He wants for each of us.  He’s gifted every single one of us with abilities, even when we feel we don’t have anything on which we can build.  Stop for a moment.  Look within and stop focusing on what you’ve lost or wish you had.  Look deeply and start recognizing all you still have, every single thing you have or are able to do is a gift.  No matter your circumstances or what you might see as your deficiencies, you have way more “gifts” than you can imagine.

To quote the Grinch, “Maybe Christmas, perhaps, means a little bit more.”

Merry Christmas and may you all be blessed with moments in which to live a lifetime!

Yesterday Once More

shutterstock_1255117942Although I might be dating myself with that song-cue of a title, I want to share something very important with you about an issue that is affecting more and more of us, an issue that is leaving families hurt, lost and confused about what to do or where to turn.  This issue is the condition called Dementia, and it not only affects older people but people of all ages.  They are even finding new strains appearing in young children.  I know this is a bit of a departure from my normal posts, but it is one to which many of you can relate.

Dementia, in any form it manifests, is devastating.  I know first-hand, because my dad, who is the most brilliant man I ever knew, has now been walking this journey for a number of years.  As a result, so have the rest of us.  This disease doesn’t just affect the patient; it sinks its teeth into every relationship surrounding them and wreaks havoc in the lives of everyone who loves them.  If you had told me it was possible for my dad to struggle like I’ve seen him do in recent years, I would have told you that you were out of your mind.  Yet, here we are.  Some days it’s yesterday all over again, and other days it’s a brand new world.

Anyone who has been affected in one way or another by the devastating aspects of any form of dementia – either as patient or care partner- can relate to the myriad of challenges, frustrations and griefs that become a part of every day life.  I heard others talk about having a loved one with dementia, and my heart always went out to them, but the truth is that I had no clue about the depth of what they were walking through.  That all changed when this disease hit my own family.

golf non dadDementia is an umbrella term, under which fall a large number of different types of the disease.  Alzheimer’s, for example, is simply the most common type of dementia, but there is Lewy Body, Frontotemporal, Vascular Dementia, and a host of others.  Dementia is not a memory problem; it is brain failure.  Just like any other organ can fail, the brain can experience failure.  Where that failure first manifests itself will determine the functions that are the first to begin diminishing.  My dad did not start out with memory problems.  You could ask him about things and talk with him, never knowing there was a problem at all.  We did however start to notice he was starting to struggle with problem solving, or things involving processes or sequencing.   We saw the signs but never recognized them.  We just blamed it on not knowing technology or being tired and stressed.  Because he didn’t have any trouble with remembering people, events, stories or anything else, it never occurred to us in the beginning that he might have an actual issue going on.  We were wrong.

It wasn’t until things really got noticeable with Dad that I began researching dementia and what to do.  By God’s grace, I stumbled upon a 3-minute video of a woman named Teepa Snow, and I was captivated.  (Here is the video that started it all: Teepa – Communicating with a person with Dementia  ) Immediately I knew I was in over my head, but I also felt a huge relief that someone could make aspects of this disease so easy to understand, (and with a great sense of humor to boot).  I immersed myself in her videos and website (www.teepasnow.com).  I took webinars and attended a wonderful Care Partner Series that was a cross between a class and a support group…twice!  Teepa, and the way she imparts coping mechanisms and techniques in how to walk this journey, absolutely changed the trajectory of ours.  Did it stop the disease? Nope.  Did it change the grief and constant changes that come with brain failure?  Nope.  What it DID change, was greatly reducing the feeling of isolation that comes when your world shrinks as you care for a loved one with this disease.  What it changed was how we viewed this disease.  It provided ways for those of us who love Dad, to offer support for him, and each other, in ways we wouldn’t have known otherwise.

shutterstock_316304594As of right now, there has not been a single survivor of this disease.  Let that sink in for a moment.  We have found ways to mitigate some of the effects of it, but it still remains a 100% fatal condition.  That may sound harsh, but it is the reality.  There is no currently no cure.  We have done a great job in this country highlighting all kinds of diseases and raising money for research, but this disease falls through the cracks sometimes.  Maybe it’s because it is often a private battle that still contains a stigma that causes people to be afraid to discuss it openly.  Maybe it’s because people who would normally be out there raising money for the cause are far too busy just trying to survive from day to day as they care for their loved ones.  Whatever the reason, we need to get busy doing all we can to raise money for research, while raising awareness and educating others, so that we can reduce the stigma associated with this disease.

My Dad is still the most brilliant man I know, and every so often I get a glimpse of that same man during a visit or conversation with him.  Underneath the looping conversations or behavior is still an amazing, loving, funny, demanding, professional and successful man; it just takes a little more to see past the surface now.  Most people who encounter those with brain failure seem to focus so much on what the person has lost in functionality, but I agree with Teepa that we need to be focusing on what someone can still do!  When we focus on the skills and abilities that remain in a dementia patient, we are able to bring out the person they’ve always been.  Unfortunately, that also means letting go of what we expected or how we think things should be, and embrace what is right in front of us.  Now that I think about it, that’s not a bad way to live our lives anyway.

Blessings!

NOTE: I will be participating in the “Walk To End Alzheimer’s” on October 12, 2019 in our local community.  I have never been one to ask for financial support for a cause, but this one is near and dear to my heart, as it is may of yours as well.  If you can make a donation to join the fight for Alzheimer’s first survivor, it would be so appreciated.  It doesn’t matter if it is one dollar, it absolutely makes a difference!     Thank you! 

Deanna OLeary’s Walk to End Alzheimer’s Page